Educational Webinars & Podcasts

Resources to inform and support patients (and their caregivers) living with central nervous system (CNS) metastasis, commonly referred to as brain metastasis.

Webinars

All about the use of radiation therapy for management of leptomeningeal cancer and updates on current clinical trials.

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Did you know that as many as 5 to 20% of people with advanced breast cancer may end up with leptomeningeal cancer? It’s important for anyone who has or had breast cancer, as well as caregivers, to know the signs.

Hear from our experts about treatments and current clinical trials on breast cancer and LM.

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Dr. Kelly McCann, a breast medical oncologist at UCLA, provides an overview of clinical trials and the BRIA ABC vaccine trial for people living with metastatic breast cancer. Although this trial is not exclusive to people with breast cancer brain metastases, its eligibility criteria allow people with stable brain metastases to enroll. Learn about how the vaccine works, what participation involves, eligibility requirements, and patient rights.

Dr. McCann also discusses how to find clinical trials and what to consider when exploring a trial with your healthcare team.

For updated BRIA trial information, visit the BRIA Cell website.

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Learn from experts about the latest clinical trials. Heather Davis shares the basics of clinical trials and informed consent. Dr. Jessica Wilcox from Memorial Sloan Kettering discusses intrathecal deferoxamine in patients with leptomeningeal metastases. Dr.Peter Forsyth from Moffitt Cancer Center talks about the dendritic cell vaccine for patients with TNBC or HER2-positive breast cancer. And Dr. Melanie Hayden Gephart shares the latest trials at Stanford using QBS72S for patients with solid tumors and leptomeningeal disease.

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Proton or photon? Targeted or whole brain? Side effects of radiation or symptoms of leptomeningeal disease? Your questions answered during this webinar on radiation therapy.

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Your cancer has spread to the brain. Now what? This 3 part meeting series from the American Brain Tumor Association will focus on life after a brain metastasis diagnosis and the whirlwind of changes and emotions that take place while already managing a primacy cancer. Gain insight into how you can increase your quality of life and manage the cognitive and emotional changes. Each video will address:

  • The Emotional Journey of Brain Metastases
  • Maximizing Brain Health for Metastatic Brain Tumor Patients: Keeping Your Brain Fit
  • Brain Metastases: Signs, Symptoms, and Management

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Dr. Nancy Lin and Dr. Ayal Aizer discuss current treatments, research updates and advances in BrainMetastases and Leptomeningeal Disease. This webinar includes information on local and systemic therapies including surgery, radiation and systemic therapies for brain metastasis and LMD.

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Check out this 6 part video series from the American Brain Tumor Association on:

  • Brain Metastases Patient and Family Meeting: Welcome and About the ABTA
  • Building Your Dream Team: Preparing for the Road Ahead
  • Research in CNS Metastases Your Care Starts in Lab
  • Navigating the Complex World of Clinical Trials
  • Weaving Quality of Life Through the Full Course of Your Brain Metastases Care
  • Brain Metastases Patient and Care Partner Panel

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The Multinational Association of Supportive Care in Cancer (MASCC) is an international, interdisciplinary organization dedicated to the practice, education and research of supportive care in cancer. This webinar aims to 1) improve the understanding of clinicians of the management of brain metastases, 2) discuss strategies for optimizing systemic therapy options for management of brain metastasis, 3) gain an understanding of neuroprotective strategies with administration of radiation options and 4) understand the patient experience of targeted therapy toxicities and how it impacts quality of life, adherence, and disease outcomes, and taking a shared decision approach

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This interview with Dr Michelle Melisko discusses the incidence, symptoms, and prognosis of patients with HER2+ breast cancer brain metastasis (BCBM). She also discusses the evolving screening, monitoring, and treatment guidelines for BCBM.

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¿Qué es el cáncer de seno? ¿Cuáles son sus subtipos y tasas de mortalidad? La Dra. Aixa Soyano analiza esta información junto con la conexión entre las metástasis cerebrales y el cáncer de seno. Ella describe la tasa de incidencia de metástasis cerebrales, cómo se desarrollan, qué cánceres se asocian comúnmente con metástasis cerebrales, factores de riesgo, qué pruebas deben realizarse los pacientes para obtener más información sobre su condición, sus opciones de tratamiento y los inconvenientes de cada tratamiento.

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The National Comprehensive Cancer Network (NCCN) has treatment guidelines specifically for patients living with brain metastasis from HER2+ breast cancer, Dr. Kari Wisinski discusses the clinical trials that led to establishing these guidelines.

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Day 1 sessions 1-2: This workshop convened stakeholders across the spectrum of brain metastases research (patients and patient advocates, cooperative group leadership, brain tumor foundations, translational and clinical investigators, professional societies, and NIH leadership) to identify priorities that will shape the landscape of future brain metastases research

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Day 1 sessions 3-4: This workshop convened stakeholders across the spectrum of brain metastases research (patients and patient advocates, cooperative group leadership, brain tumor foundations, translational and clinical investigators, professional societies, and NIH leadership) to identify priorities that will shape the landscape of future brain metastases research.

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Day 2 sessions 5-7: This workshop convened stakeholders across the spectrum of brain metastases research (patients and patient advocates, cooperative group leadership, brain tumor foundations, translational and clinical investigators, professional societies, and NIH leadership) to identify priorities that will shape the landscape of future brain metastases research.

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This webinar, presented by the American Brain Tumor Association (ABTA) and Living Beyond Breast Cancer (LBBC), is an expert panel discussion including both breast cancer brain metastasis and leptomeningeal (LMD) disease. The webinar covers risk factors, signs and symptoms, treatment option and a peak at a tumor board, providing insight into clinical management. The goal of the webinar is to provide critical information to help you understand the next steps in your care, explore research and advancements in treatment and better understand management strategies for brain metastasis. Panelists include Dr. Nancy Lin, medical oncologist at Dana-Farber Cancer Institute, Dr. Jennifer Yu, radiation oncologist at the Cleveland Clinic, Dr. Manmeet Ahluwalia, neuro-oncologist at Miami Cancer Institute and Dr. Kaisorn Chaichana, neurosurgeon at the Mayo Clinic.

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Nancy Lin, MD, moderates a multidisciplinary expert panel, including Ayal Aizer, MD, MHS, radiation oncologist; Wenya Linda Bi, MD, PhD, neurosurgeon; Ugonma Chukwueke, MD, MPH, neuro-oncologist; and Lianne Kraemer, a patient advocate living with breast cancer brain metastasis. Recorded November 16, 2021.

YouTube player

As systemic control improves and there is more routine surveillance imaging, breast cancer brain metastases (BCBM) are becoming an increasingly common diagnosis.

In this webinar, Dr. Aixa Soyano, Assistant Member in the Department of Breast Oncology at the Moffitt Cancer Center, and Dr. Kamran Ahmed, radiation oncologist at Moffitt Cancer Center, discuss their research and advancements in BCBM, as well as recent studies that reveal improved outcomes for BCBM patients.

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Podcasts

Co-hosts Victoria Goldberg and Dr. Paula Jayne sit down with neuro-oncologist Dr. Priya Kumthekar to talk about leptomeningeal metastases: what they are, how are they treated, and what research is upcoming, including a discussion on ANGled, the new Phase 3 trial for MBC patients newly diagnosed with leptomeningeal metastases. Listen or read full transcript.

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On 10/12/21 Lianne Kraemer, an MBC patient advocate living with brain mets , and SHARE hosted two brilliant young clinicians from Moffitt in a discussion on management of breast cancer brain metastases. Today we are bringing you this webinar with our additional commentary. We will let you in on a little secret. This episode is a glimpse into how we envision the next season’s Road to a Cure. It will include more content with an educational angle for the newly diagnosed or those who are ready to take a deeper dive with us into the basics. We call it MBC101. Listen or read full transcript.

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Musa Mayer is known to many in the art world as a steadfast manager of her father, Philip Guston’s foundation, and as the writer of two well-received books about his life and art. But for those of us in the world of tumor markers and CT scans, Musa is a legend for different reasons. Host Lisa Laudico speaks with Musa about her life as an advocate for individuals living with MBC before she retired in 2015. Joining Lisa are MBC advocates Christine Hodgdon and Lianne Kraemer. Christine and Lianne are the architects of the new one-stop website resource hub for individuals living with brain mets or leptomeningeal disease. This website was inspired in part by the work that Musa did in the early 2000s. We talk about how much has changed for people living with MBC and the work still to be done. If anyone ever questions whether advocacy can change the trajectory of this disease and our lives in the process, well, those folks have never met these women or heard what they’ve done. Be prepared to be seriously impressed. Listen or read full transcript.

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The Road to a Cure series heads to Boston to have Senior Producer and Co-host, Victoria Goldberg and co-host Dr. Paula Jayne speak with Dr. Nancy Lin and Dr. Heather Parsons about the possibilities and the current barriers to considering a cure for HER2+ MBC. Dr. Parsons and Dr. Lin are medical oncologists and professors at Harvard Medical School. Dr. Lin is also the Director of the Metastatic Breast Cancer Program and the Associate Chief of the Division of Breast Oncology at Dana Farber Cancer Institute. While an amazing gift, long-term survival among some HER2+ patients can also sometimes bring special challenges. Given the higher prevalence of brain metastases among HER2+ patients, Drs. Lin and Parsons also discuss current research on brain mets, along with areas of promising overall MBC research for each subtype. Listen or read the full transcript.

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Join us to meet two leading MBC advocates who are focused on addressing issues related to Brain Mets and MBC. Christine Hodgdon and Nunny Reece speak with Lisa Laudico on the MBC Alliance Marina Kaplan Project, living with Brain Mets, treatment side effects, advocacy, mental health, Tik Tok and more. These women are leading in inspiring ways. Listen or read the full transcript.

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